Our Journey
We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 3 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past two years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Just recently baby Nicholas joined our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Monday, November 16, 2009
Wednesday, November 11, 2009
Will You Stay In This House and Rock My World?
If you know what I mean by the caption then you are just as embarrassed as I am. I put my headband on Noah and pretended he was from that reality show "Rock of Love.". The trashy Brett Micheal's dating show that came on vh1. I can't believe I just admitted that I watched that show on my blog but the sad truth is I did. Brett always wore a ugly headband to cover his balding head (so that is what the blue headband symbolizes) and at the end of the show his question to the trashy girls competing for his affection was "Will you stay in this house and rock my world?". So I was bored while Noah was eating lunch and as I took these pictures I asked him the same question. We laughed and laughed together during his whole lunch.. Ha Ha
Sunday, November 8, 2009
Hug Your Son or Daughter Tonight
As I am writing this there is a little boy who is 3 years old fighting to breathe. I found his blog only recently but have been so touched by his story and the strength of his parents. Tonight I feel immense pain for this family and the loss they are about to endure. They are with their son in the hospital praying for him to go home with God. He is suffering and has fought long and hard on this earth. I have never met this family but last night I cried for the pain they are feeling. I pray that they will get through this heart wrenching time and that their son will no longer feel pain. Tonight I look at my beautiful children and am thankful they are home with me. I am thankful they are not in pain. I am thankful that I can put them to bed and kiss them goodnight. I am thankful for so much right now. Please pray for this family. The little boy's name is Gavin. Please pray that his suffering ends soon. Hug your children and thank God you can tuck them in tonight.
Thursday, November 5, 2009
Pablo and The Pumpkin
We had the absolute best Halloween ever with the kids. It started out a little rough with Noah cranky but then he came alive with the spirit. Our neighborhood was awesome for trick or treating. I was not going to go door to door but if you could see how festive our neighborhood was, you would understand why I changed my mind. Noah was Pablo the Penguin and Nicholas was a pumpkin. This was the first year Noah was interested in walking up to the doors. Every house we went to he tried to walk in the front door. It was so cute. Nicholas loved all the lights and just stared at everyone dressed up. One of our neighbors had a haunted house that we all walked through. The kids didn't get scared at all. It was all around a great time for all of us. Some of the pictures show the fussy moments though. Noah was annoyed with his penguin hat and wanted it off the whole time. I think Nick was feeling the same about his bulky pumpkin outfit.
Tuesday, November 3, 2009
A Trip To The Pumpkin Patch
Monday, October 26, 2009
Sunday, October 25, 2009
Noah's Real Birthday Bash.
You didn't really think we would only have a boring home party did you? No way Mr social butterfly would not stand for that. We had Noah's real birthday bash on the Sunday following his birthday. Where did we have it? None other than Noah's absolute favorite place in the world Dave N Busters. If you don't know what Dave N Busters is let me fill you in. It's a restaurant attached to a huge video arcade. Noah loves this place for a few reasons. It's dark (he hates sunlight), its bright with lots of blinking lights and its crowded. Noah loves to be in a crowded place. I know I hate crowds but hey Mr. Social Butterfly gets what he wants on his third B day. We had some very close friends and Noah's Grandma and Grandpa celebrate with us. We were sorry that my family that lives out of town couldn't join us . We missed you a lot Mom and Pop and all of Noah's Aunt's and Uncles. It was also one of our close friends birthday so we celebrated it along with Noah's. Noah got a lot of really cool gifts. Thank you everyone who thought of Noah on his special day. It was such a fun day for Noah and we feel so blessed that we shared his day with so many special people. Here are some pictures of his B day Bash. He hated when we sang Happy Birthday to him. He was scared of the candles on his cake.
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