We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Tuesday, September 16, 2008
Ok I have to admit today was a pretty boring day. Noah has been feeling a little under the weather with a fever for the past few days. I canceled his therapy for the day and we were both getting a little antsy sitting around the house. So we decided to play the "Hat Game". Noah and I take turns putting on this big purple hat and taking it off each others head. I know we are both weird sometimes but hey it made us both laugh. And this isn't just some ordinary purple hat. Tommy wore this hat when he entered the best dressed "pimp" contest when he was in his 20's (ha ha) and pre Noah days.. This is what we resorted to today..(playing with the old pimp hat.)