We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Monday, September 29, 2008
My Big Boy
Today Noah had aquatic therapy and his therapist mentioned how much stronger he is. For the past few months Noah has been having a very hard time at therapy (dealing with a lot of anxiety.) But the past week or so it's like Noah is a new baby. I can tell his confidence is soaring and he is so excited to be on his feet. Instead of pulling up to his push toy and screaming his head off, he pulls up and practically runs through the house with it. He is walking so much better holding onto my hands also. I am noticing that he is so much more motivated to walk around and be on his feet. Today Noah's therapist said "It won't be long until Noah is walking." I know he will do it when he is ready though. He is such a big boy and we are so proud of his new found courage lately. Way to go sweet boy..