We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Wednesday, September 3, 2008
My First Entry
So I have decided to blog since I have been following my fellow RTS friends blogs for a while. I promise I will try to keep up with it ...Today Noah and I went to PT and ST (what we do every Wednesday.). I found myself with tears in my eyes watching Noah struggle with his anxiety during therapy.. I felt so guilty for just sitting there and not picking up my baby and running out.. For the last few months he has cried, shacked, screamed when the therapists try to get him to do something. I have come to dread PT lately because of this. I think me and Noah are just sick of therapy all together. I wonder what it must feel like to be so little and have to go to therapy every day?? Yuck.. So for the rest of the day Noah and I will just relax... Hope everyone will enjoy reading about my little one...