We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Wednesday, October 15, 2008
ENT APPT, THERAPIES ETC.
Today our little boy is 2 years old. I can't stop singing Happy Birthday to him over and over. I think he is starting to wonder what my problem is ha ha. We had his party on Sunday so today will just be Noah and I. I'm going to get him a little cupcake and sing to him again. For his birthday breakfast he had waffles and a sippy cup full of milk. Then off to physical and speech therapy. In speech therapy we discussed using pictures as a way to communicate for right now (avoid frustration) My speech therapist wasn't too keen on the idea and would rather concentrate on Noah vocalizing. Duh I would rather see Noah vocalize too but right now he is just babbling. I don't see anything wrong with trying something new. We are also concentrating on signing but Noah isn't too interested in it yet..He does know how to sign "milk", "more", and "all done" sometimes. I want to do whatever I can to help Noah communicate even if it is a alternative choice. During physical therapy Noah did fabulous. I had posted about his anxiety a few months ago but now his confidence has taken control. His pt says he has the skills to walk now he just has to want to. "You can do it Noah." Some other news... I forgot to post about Noah's ENT appt. He had a hearing test done and ear tubes checked. He passed his hearing test with flying colors. I was so happy because prior to the ear tubes they suspected some hearing loss but this time all was good. Happy Birthday Again Sweet Boy.. Ma Ma and Da Da love you so much.. More than the sun, moon and the stars..