We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Saturday, October 4, 2008
Drum roll please for a small victory in our house. We have been trying to teach Noah how to clap which seems like a eternity. Yesterday Noah and I had just finished watching a movie so I started saying "ma ma claps her hands.". Then I would clap and I then said "Noah clap your hands" and just like that he started clapping. I was so excited I picked Noah up and starting yelling "yeah Noah clapped his hands.". He looked at me like mom what is the big deal?? But it is a huge deal to Tom and I. What may seem like a "small" accomplishment to others is like a "huge" victory to us. I often wonder if and when we have another baby (if the baby is "typically" developing) will I get this excited? I'm pretty sure I will because that is all I know. I only know how to jump up and down like a crazy person when a milestone is finally met. I only know how to work and work and work to help my child reach a milestone. I only know how to keep going when I feel like I want to give up. And I only know this beautifully unique world that Noah has led me into.