We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Tuesday, October 28, 2008
Noah and Ma Ma
OK these pictures were taken without me knowing it but I thought they were funny. I have been posting about my morning sickness (well all day sickness) so I thought I would share just how bad it is. I feel so guilty because I have been laying around a lot and too tired to do just about anything. I am still taking Noah to therapy 5 times a week and working on walking with him but that's all I can get done in a day. I wish I would stop feeling so guilty and just accept that I am sick. It is so hard to take care of a toddler and go through this at the same time. For all the moms that did how the heck did you manage??