We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Thursday, October 23, 2008
I haven't blogged for quite a few days and most of you probably know why. I haven't been able to muster up the energy to do anything to tell you the truth. Then I just couldn't really think of anything to blog about either. But today I caught Noah in his room playing peek a boo by himself.. Yes, underneath Tommy's big huge bathrobe is Noah.. It was so cute, he didn't know I was in the room until I caught the picture of him smiling.. He always finds new and creative things to play peek a boo with.