We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Monday, November 24, 2008
Since I turned two I wanted to write about all the fun stuff I'm doing. I am trying really hard to walk. I like to push around my push toy and anything else that moves. Ma Ma and Da Da hold the top of my shirt to balance me and I can walk really fast. My Nana bought me a sit and spin toy and I figured out how to use it right away. It is so fun!!! I like to spin around and wait for everyone to clap for me. I love to clap. I clap after every bite of food I take or whenever I think someone is watching me. I love music too!! Mama is thinking about taking me to "mommy and me" music lessons. Everyone says I'm a natural. I am still babbling a lot too. Ma ma got me extra speech therapy during the week to help me. Yucky more therapy.. I love to go to the park and swing for hours. I also love my water therapy. Oh and I'm going to be a big brother this year. I don't know how I feel about that sharing mama and dada yet. I bet it will be really cool though. Well I have a lot more playing to do today. I will tell Mama to keep up with my blog more. Love, Noah
Tuesday, November 11, 2008
I have been reminded by my loving sister that I have not posted on this blog in quite some time. It has been difficult to get my mind focused to do much of anything lately but I will try to continue keeping up with it. I wanted to post a update on Noah and how he is doing with everything. We are working so hard with Noah on his balance and confidence. He is constantly pushing anything he can find in the house and walking with it. His favorite thing to push is his highchair. He started to walk all along the walls now while holding on somewhat. I am seeing a lot of improvement in his balance when he is standing. If he doesn't realize he is standing alone he is fine. But the minute he realizes he is not holding onto anything he loses his balance. I am sure the aqua therapy is helping him a great deal. We have also been working with using a lot more signing. He understands what I am signing but he has yet to master most signs. He does use "more" consistently and "all done". I think one day a light bulb will go off and he will understand if he uses these signs he will get what he wants faster. All of his two year appts went well. Tomorrow he will see the eye DR to get his dilated exam. I am hoping all will go well with that. Noah is still babbling a lot. He says "ma ma" a lot and a few times we heard him say "da da". He uses a few different constanants such as ha ha, ba ba, ra ra, wa wa and some others I can't think of right now. Oh and he will say "up" for his Uncle Micheal. So all in all Noah is doing great. I am starting to feel a little better although I am seriously tired all the time. But there is a light at the end of the tunnel..
Wednesday, November 5, 2008
Saturday, November 1, 2008
Yes Noah was a pirate this year and he was so darn cute. I think the pirate costume suited him perfectly just like his pumpkin costume did last year. Daddy took Noah trick or treating with his cousins and he had a blast. Although he didn't get to eat any candy thanks to mommy. I stayed home feeling yucky like usual but I did get to see lots of pictures. While Noah was at my sister Heather's house last night he showed everyone that he is going to be a musician someday. Everyone was amazed at Noah playing the drums. You would have to see it to believe it. Noah is like a natural sitting on the chair playing the drums. I'm going to include some pictures of that as well. They did take some video of Noah playing that I will upload tomorrow. It is truly one of the most amazing Noah moments. I am so proud of our little man and his love for music.. Enjoy.
I apologize to all my family who enjoys reading my blog. I have really been slacking where my blog is concerned. Don't worry I will get energy again sometime soon. I did have a little spurt of energy when I carved this pumpkin with Noah on Halloween. Noah was so fascinated watching me carve the pumpkin. Here are some pictures of Noah and Rocky.. I'm going to post some pictures of Noah in his Halloween costume too..