We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Tuesday, December 16, 2008
AM I DOING ENOUGH??
Thank God for my blog today because I really need to write out my feelings. I am having a hard day today. I am having the "Am I doing enough feelings of guilt". I know most of you know what I am talking about. That nagging feeling that just won't quit as much as you would like it to. I wonder if I am being a good enough mom to Noah? Am I doing enough to help him developmentally? Am I working hard enough with him on his walking? Do we need more therapy? Is there a therapy I am missing? What about his speech? Am I doing enough to motivate him? These feelings really get to me because I feel like Noah's development is resting on my shoulders. I know logically that this is not true. Most of it is up to Noah. When he is ready to do things. I like to call it "On Noah's time". But is that just masking my true feelings? Sometimes I really do feel that it is all up to me. I wonder how I am going to spread my time with a new baby? Will I be able to give him the attention he so desperately needs? As you can tell my head is spinning today. Once in a while the guilt really eats me alive. I know tomorrow will be a new day with new feelings but right now this sucks. Thanks for reading.. I try to keep my posts pretty positive but once in a while this happens..