We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Friday, January 30, 2009
I Am Getting Frustrated.
Today I am feeling frustrated. This is so hard being pregnant and trying to get everything done that I should with Noah. I don't know what else to do to help Noah with his walking. I am going to be honest and say at this moment I feel like a failure. I thought for sure he would be walking by now and it makes me sad and frustrated at the same time. I keep thinking that I have not done enough these past months because I haven't felt well. I feel like I try and try and then try again. I am angry at all the mom's who get it so easy. One day they wake up and their one year old is walking..Then they complain about all the stuff they are getting into or that they are running off. I just want to scream to all these mom's to be thankful that you don't have to bust your butt to see it happen. Then they complain and say they wish their little one would stop talking so much that it is annoying. God how I wish I could hear Noah talk too much. Today is just one of those days that I feel overwhelmed and a little bit annoyed with life. But in the end I am grateful for what I have just tired and don't know what else to do anymore.