We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Wednesday, January 28, 2009
I Am Grateful
Last Sunday evening a sweet girl named Bella passed away. Bella had RTS and would have turned 2 years old in February. Please pray for her family in their time of grief. The passing of Bella inspired me to write these feelings.
I am grateful for the way you hold my hand over your face why you fall asleep in my arms. I love that you don't want to let go. You hold my hand so tight.
I am grateful to hear you cry in the middle of the night. I know that you need me but you are ok.
I am grateful for your laughter, beautiful smile and the way you're blue eyes sparkle when you are happy.
I am grateful for all the sounds you make. You are trying so hard and I am proud. I love when you say mama, nothing else matters in that moment and my heart rejoices.
I am grateful when you wake up. I hold you close and listen to you breathe. Another day has begun and life is beautiful because of you.
I am grateful that you will be able to walk and you are almost there. Remember slow sometimes is fast enough. We will cry, laugh and celebrate when we are blessed to see you walk.
I am grateful to take you to 5 therapies a week. I know that you are thriving and this feeling comforts me.
I am grateful for your health. I pray every night that you will stay healthy and happy.
I am truly grateful to be your mom. You complete me and I love you forever. Every day I will thank God for bringing you into our world. When I became your mom, I experienced a love I have never known. You are so loved Noah.. My little prince...
Remembering Sweet Bella...