We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Monday, January 19, 2009
Noah is going to have a brother!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Ok I know in my last post I said I was going to get better at this blogging thing. I lied. I have just been really busy trying to get back into the swing of things since our vacation. We have been home a little over a week and all of a sudden it feels like we never left. Back to therapy, Dr appts etc.. My level 2 sonogram was last Monday. I wanted to announce my news that Noah will have a little brother. Yes its a boy. I thought for sure we were having a girl but I am happy just the same. The Dr said all the baby's organs and measurements were normal so far. He even looked at his hands and thumbs and said they were beautiful hands.. I was so nervous laying on the sonogram table that I had a couple of contractions. I didn't even want to move or breathe. It brought back a lot of memories of the sonograms I had when I was pregnant with Noah. Every sonogram I had the DR found something that just wasn't quite right. For a few minutes the pain flooded back that I felt over 2 years ago. Knowing that there was something wrong with my baby but not knowing what. I couldn't wait to get home to Noah and just give him a hug after that. I have another sonogram when I turn 24 weeks to recheck the measurements and the heart. I will also have a echocardiogram just to be safe. This is all precaution when we hit the 35 mark.. Yippee.. Later when I am not so tired I will post pictures of our trip... Right now Noah is throwing a temper tantrum because I am sitting in his spinning chair. Pardon me dear prince... Recheck the blog for pictures ...