We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Thursday, March 12, 2009
MidWest RTS Reunion
This past weekend Tom, Noah and I went to Wisconsin Dells to meet some new friends. It was one of the best experiences I have ever had. To walk into a room and feel like you are truly with people who understand and "get" our every day life is just priceless. I felt so comfortable and so much at home over the weekend. I met so many children that reminded me so much of Noah. Noah played nicely and shared his toys with all the kids. His toys were a hit in the group room . We brought all his musical toys and it was apparent most of the kids loved music just like Noah. I'm going to post some pictures of the kids playing. There is one of Noah and Jessica who is 20 years old with RTS. She took a liking to Noah and wanted to have a couple of pictures of the two of them. The other pictures are of Noah and Christopher playing who is 3 with RTS. Lots of love this weekend.. Thank you to Terri who coordinated this whole thing. We are so blessed to be able to share in this experience.