Our Journey

We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.

Monday, March 2, 2009

Noah at Water Therapy

Today Noah had water therapy. This is absolutely his most favorite time of the week. When I ask him if he wants to go to the pool he cocks his head to the side and smiles really big. Today Daddy got to meet us at therapy so that was really cool for Noah. He was showing off beyond belief today for his Dad. He stood all by himself in the water on a platform and he climbed up on a hard board all by himself. This is really hard in the water and takes a lot of balance. The biggest thrill of the day is that Noah said the word "ball". Noah and his therapist were playing ball and the ball rolled away, Noah then said "baaalll". His therapist and I both heard him. I really wish that we could do speech therapy in the pool because this is where Noah is the most verbal. Last week he said ma ma the whole 30 minutes he was in the pool. I am so proud of Noah and I really hope once he is walking his speech will progress. I just keep praying ..


Brandi said...

That is AWESOME! Do you get water therapy and speech therapy at the same location? If so, why not give it a try? Nathan is the most verbal in the bathtub. Our SLP told me that it takes pressure off of his chest and he can make more sound.

angie said...

Yeah Noah!!! The speech will come...just keep on working on it. If it works in the water...do it:). He is so adorable! I've tried to comment on your site before, and it hasn't let me...so, I'm hoping that it will today:).

Jacqui said...

WOW that is amazing. You must be so so happy. I like the the concept of Speech Therapy in Water...why not?? Especially if he loves talking whilst in water! :)

Jessica mommy to Alex/ RTS said...

He is so sweet.

Terri H-E said...

Well done, Noah. They do speech therapy on a horse, so why not in the water - it really does make a lot of sense. For Addie, we'd have to do it on windy days outside - you should hear that girl in the breeze!

Can't wait to see Noah loving the water this weekend!

Kelly said...

Noah is going to be doing cannonballs this weekend and Max is going to be scared and clinging to me. Last time we were at a pool, he wasn't a big fan. Kelly f

PS That is awesome he said "Ball". Way to go!

Toots said...

We are so proud of all your accomplishments in swim therapy and beyond! We love you and miss you!
Aunt Angie & Uncle Tommy