We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Wednesday, April 1, 2009
Here is Noah doing what he loves most. Chillin in his office spin chair. Every day he listens to a different CD and bangs on the chair until I put him on it. If it were up to Noah he would spin on this chair all day long. As you can see he looks pretty happy. He looks so big to me in these pictures, I can't believe my baby is growing up.. I love you my little spinner..