We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Thursday, April 23, 2009
Noah is Bored.
Lately Noah seems to be really bored with all of his toys and everything I try to do with him. I am in the middle of being extremely sick with a horrible cough. It's really hard right now to find anything that will entertain him. He has been just holding onto my legs and whining for most of the day. I think he is just over all of the toys he's had for a while and is ready to move onto bigger and better things. What kinds of activities do your little ones like to do? I think I am going to make a trip to the store today and find him some more challenging things to do. That is only if I can make it out the door. My ribs are so sore from coughing and I am having lots of Braxton Hicks contractions. Please pray that this baby stays where it should be since we are moving very shortly. I just realized that I am rambling so the title should be titled Ramble Post. ...