We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Monday, April 13, 2009
Who needs a Easter basket??
Here is Noah relaxing in a hammock on Easter Sunday. I think he got in and out of it for at least half the day. Noah did get a couple of Easter Baskets but once he got the straw out he wasn't interested in what was inside. So, this is how Noah spent his day. Relaxing in the Florida sun.