We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Tuesday, July 14, 2009
I am having the hardest time deciding what to do about Noah and school. It is a nagging feeling that I am getting in the pit of my stomach. Sending my little guy who is turning 3 in October but looks like he may be 18 months old to school. How do I do this? How do I let myself feel OK about this? It might me easier if Noah was walking independantly but he's not right now. What if he isn't by the time he turns 3? Then its a even worse thought, sending my 3 year old who can't walk by himself to a foreign place. That is such a big fear for me. Noah will be evaluated at the end of August by the public school system. I am petrified about this as well. I am debating private and public preschools right now. As you can tell I just need to get these feelings out so I can deal with them soon. I know I don't want to hold Noah back based on my fears. And I know if I keep him out of school this year that is exactly what I would be doing. Noah is awesome around other children and I know he really needs the social development. I know that he will thrive once he starts school but I am still scared..