We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Tuesday, July 28, 2009
One More Step Forward
Walking... This is what is keeping me up at night. I know I shouldn't be beating myself up about it but I am. Yes, I know, he will do it when he is ready. I have even been bold enough to give that advice myself . It is so hard to accept my own advice sometimes. Just the other night I was sitting on the couch telling my husband that I feel like I have failed. Why can't I learn to accept that I can't control this?? Still, I can't control my fear and anxiety where this is concerned. But here we are in the moment trying to find hope. Trying to keep holding on knowing that one day soon Noah will walk. I have said to myself that it is a hard thing to be a mom and have to pray every night that your child will walk and talk. But then I read other blogs of mom's whose children will never walk and that forces me to put things in perspective. My little man is taking small steps forward. I know that he will make it soon. He is the biggest fighter I know.