We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Thursday, July 9, 2009
Welcome To The World Baby Nicholas
On 6-9-09 at 4.39 pm Nicholas Aiden Suarez came into our lives and changed us forever. With two easy pushes our beautiful, healthy, loud crying son made his existence known. I will never forget the feelings I had right before I laid eyes on Nicholas. I was so petrified that they were going to take him away like they did with Noah. I couldn't even breathe. I looked at the DR and said " I can't do this." But of course there was no getting up and running away at that point. I felt frozen almost like I was outside of my body. After only ten minutes of pushing I heard our sweet boy crying. The Dr laid Nicholas in my arms and I felt my breath somewhat return. I looked at his hands and feet first. I studied his thumbs for what seemed like an eternity. Then they picked him up and checked him out. I still to know everything was fine. I was so scared. Everything was so different the second time around. I didn't have to lay eyes on the NICU. I didn't have to see my baby with IV's, feeding tubes and Dr's that never left. There I was alone with my baby and my family. It all seemed so unreal. I couldn't wait to see Noah and have him meet his little brother.
When Noah arrived he could care less about his brother, he just wanted to explore the room. I had Nicholas on Tuesday and Thursday at noon I was discharged. What a wierd feeling to be leaving the hospital 48 hours after I gave birth. (with Noah I stayed in the hospital for 5 weeks while he was in the nicu) Everything just seemed like a dream. Noah is handling having a little brother in strides. Some days he wants all of my attention and he ignores the baby. Other days he is very interested and wants to help me change his diaper. He always laughs hysterically when Nicholas cries. Sometimes he tries to comfort him by gently stroking his arm.. So Sweet.. I think Noah is going to be an amazing brother. I also see in Nicholas that he will be Noah's protector. When I look into Nick's eyes I see strength and love. Just like his big brother Noah. They will make a perfect pair. I am so blessed to have two beautiful son's . Thank you God.