We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Thursday, August 27, 2009
If You Pray
I am dreading tomorrow morning horribly. Tomorrow starts the evaluations for Noah with the public school system. I have not made any decisions regarding his schooling right now. I am going to wait and see how everything turns out at the evals and IEP meeting. I have a lot of anxiety where this is concerned. So if you pray please pray for us.. Sorry this is quick but I have two crying kids right now.