Our Journey

We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.

Thursday, August 6, 2009

Let's Help Raise Money with Addie's Dad..

Noah has a friend named Addie who also has RTS. Her awesome Dad is running 26.2 miles to raise money for the Special Friends Foundation. This foundation has helped families affected with RTS in so many ways. If you would like to read more about it click on the link at the top of my blog. I would just like to say thank you to Addie's Dad for doing this for our children. It means a lot..

1 comment:

Ad's Dad said...

Wow, I'm touched at how many nice people are helping spread the word about our little fund raiser. Thanks a ton - Terri, Cate, Addie and I are thrilled to be able to give back even a tiny bit to a organization that has meant so much to us.

This is for Noah and Addie and all the remarkable people we've met in the RTS community!

Thanks,

Michael