We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Tuesday, August 25, 2009
Noah's Latest Pastime
Is it just me or does Noah look like such a big boy in these pictures? Noah has found a favorite hobby. If I let him he would just open and close doors all day long. He is finally tall enough to reach the door handle and figured out how to open it. He finds his new pastime hysterically funny. He laughs so hard that I would swear the neighbors could hear him. I also forgot to post what happened when we went to Noah's Dr appt last week. Noah and I were walking toward the elevators (Noah is obsessed with elevators) when he decided to let go of my hand and take a few steps by himself. He really wanted to get to that elevator. When he realized that he let go, his arms went flying up in the air. It was only a few steps but I was really excited. Pray for my boy that he will walk soon.