We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Tuesday, August 18, 2009
What About The Things I can Do?
Hey Guys it's me Noah. I just wanted to write about all the cool stuff I can do now. It makes my mommy feel better with all these evaluations for me coming up. My most favorite thing to do is puzzles and point to pictures in my books. There isn't a puzzle you put in front of me that I don't try to finish. Don't mean to brag but I rock at puzzles. I babble a lot but I like to say "ma ma" the most. I always see mommy smile a lot when I say that. I am starting to understand this whole "signing" thing now since mommy got me the "signing times" dvds. I like to sign "more" for "yes" and "more" but I'm trying to work it out. The other day I signed "eat" and "dog". (I was watching the movie when I signed "dog". Mommy and Daddy can usually understand what I want because I am now pointing to everything. I can scoop my own food by myself and I'm started to use my fork too. I climb on and off furniture and I'm trying really hard to be brave enough to walk without a hand or finger. I can pick out the right shapes when I am asked. I know triangle, square, circle, oval, rectangle. Oh and I am learning how to color. I pick the right answer to all of my flash cards too. Mommy always tells me how smart I am and I feel so proud of myself. I am learning my colors now too. Well there is so much more but I don't want to brag too much about myself. Peace out everyone, Love, Noah.