We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Thursday, September 17, 2009
Because I'm Thinking Of You
When I became Noah's mom a whole new world opened up to me. It was a world I knew existed but one that I never gave a whole lot of thought to. A world that has made me a better person with a stronger sense of self. A world that has forced me to look at life in a different light and be grateful for the things I have. Today I have been thinking about other mom's. Other mom's that have experienced grief and pain. I'm thinking of the mom who just got a diagnosis for their son or daughter and is grief stricken. I'm thinking of her and hoping her tears fade soon and her heart is full of joy again. I'm thinking of the mom who has to see her child for the first time in the NICU. I hope she feels strength and courage to make it through another day. I'm thinking of the mom who has to be strong to lift her child up every day because they can't walk. Her dedication amazes me. I'm thinking of the mom who carried their child for 9 months knowing that they would only have a few minutes of life. The beauty within her is overwhelming. I'm thinking of all the mom's who have given me hope and courage to be the best mom to Noah. I am so thankful to have all of you in my life. I'm so thankful for the gifts God has given me. I'm so thankful to Noah for softening my heart even more than it already was.