We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Tuesday, September 22, 2009
How Should I Handle This?
I am feeling completely frustrated and I'm not sure how to handle this. I'm hoping some of you can give me some advice. The past two days Noah is refusing to walk. If I try to get him to walk some where he squats his legs and leans backwards. I'm trying not to feel anxious about this because I know Noah senses when I am. It's just I have never been happier when I saw him take his first steps. It was such a long time coming and now I'm feeling sad. Today at therapy he did the same thing. He wouldn't walk and wouldn't do any of the stuff he normally does. I am wondering if any of you have any advice? I'm feeling at a loss and not sure what to do.