We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Thursday, September 10, 2009
Today I Celebrate You
You took my breath away today. Today for the first time I saw you walking by yourself. You walked ahead of me with that bathrobe tie hanging behind you. You looked like you had been walking for a year or so. A few times you practically ran but I had to slow you down. You walked all around the house like that for almost two hours. You still won't let go of that bathrobe tie but you are walking. Your Dad and I are so proud of you Noah. I admire the way you never give up. You are my inspiration and my love for you runs deeper than you will ever know. You have worked so hard and I know sooner than later the bathrobe tie will be a thing of the past. You walked today. I still can't believe it. I am so happy. I love you. You have taught me a huge life lesson Noah. Today you taught me that hope, determination, courage, strength, and love always win in the end. Today I felt joy. Today I celebrate. Love, mom