We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Saturday, October 10, 2009
A Different Perspective
I'm not really sure how to put this into words but I will try. I have heard a lot of people say that having a "typical" child after their special needs child helped heal old wounds. The interesting thing is, I don't know if I have experienced that same feeling. Of course after Nicholas was born I was glad he was healthy and thriving. I was relieved that he wasn't whisked away to the NICU while I lay feeling helpless and fearful. At times after Nicholas was first born I felt so much pain inside of me. I cried myself to sleep a few times remembering what Noah and I went through. I felt guilty that I was feeling this way right after he was born. I remember the first night Nicholas was home I went into Noah's room and bawled beside his crib. I had the hardest time accepting the "typical" birth and "typical" all together. It seems weird to write this out but it's the raw truth. "Typical" is still so bizarre to me at times. I don't want anyone to think I am wishing things were different because I'm not. I guess when you start out in Holland it's a shock when you get to Italy. Everything is faster when you are so used to a slower pace. I am so happy that Nicholas is reaching all of his milestones but at the same time I feel a twinge of pain. This is what I don't understand. I suppose it's a pain for Noah even though Noah could care less that it took him so much longer to do the same things. I hope that someday the wounds that still surface sometimes will go away. I don't know if that is realistic but I will hope anyway.