We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Wednesday, October 7, 2009
He Will Have A Voice
A couple of comments I have received from strangers lately inspired me to write this post. Yesterday Noah was in therapy and I was in the waiting room talking to another mom. She told me her son was 2 and speech delayed. I told her my son was almost 3 and also speech delayed. I proceeded to tell her we use sign and pictures at home to help Noah communicate. She said "I have not signed with my son because that will make him lazy and not want to talk.". I then said "Actually its a proven fact that signing and any alternative communication does not delay speech any further." She looked at me like I had two heads and the conversation ended. Then over the weekend we took the kids to the park for a few hours. I was pushing Noah on the swing and he signed that he wanted to "stay on". I asked him again "stay on" and he signed "on" and "more. I always verbalize when I am signing with Noah. A lady was watching us and asked if Noah was signing? I said yes and didn't say much more. She then told me that she never signed with her children because she was scared they would not talk. I was rather annoyed at her ignorance but just smiled and continued swinging Noah. For anyone that is confused or may not understand. Signing and alternative communication will not delay Noah any further. I am saying this for the people who love Noah and want the best for him. Also for the people that love Noah and may feel uncomfortable asking me. I don't know if Noah will talk or not. I can't tell anyone that. That is in God's hands and it is something I have had to come to terms with. It is one of the hardest things I have ever had to accept. What I do know is that I will give Noah every opportunity to have a voice. Whether it be through sign, pictures a communication device or talking. He will be heard. I will make sure of it.