Our Journey

We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.

Thursday, April 30, 2009

A Happy Moment.

This afternoon I was rocking Noah to sleep. Every time I put him down for a nap I sing the same song to him "I'll Stand By You." I've been singing this to him ever since I can remember and he falls asleep beautifully. Well, this afternoon as soon as I started singing the baby starting rolling and kicking. Then I looked down and Noah had a huge smile on his face and then cracked up laughing. Every time the baby would kick Noah would laugh hysterically. It took a little longer for him to fall asleep today but I thought that it was such a sweet moment. Noah was feeling his little brother move and his little brother was listening to Noah's sweet laughter. This was a happy moment for me today. I can't wait for Noah and ?? baby to meet.. I know they are going to love each other so much.

Monday, April 27, 2009

This Is What I Call Fun Ma Ma





We got a toddler swing for Noah and hung it up inside. So now the little prince is not full of boredom anymore. It's great to have the swing inside because that means once in a while I can sit with him and relax. Here are some pictures of him enjoying his new swing. Oh and I found Noah with this stuffed animal on his head as you can see in the picture.

Friday, April 24, 2009

No Music . No Way.




Ok so yesterday I posted that Noah was bored. I mustered up the energy to take him shopping and buy a few things for the baby. Since Noah has been working on coloring, textures and finger painting in OT, I decided to get some of these things for home. I got him some crayons that he can hold easily in his palm and are bright and colorful. Along with some finger paints, play dough and small building blocks. Well I tried the play dough first which he loved. Only problem with the play dough is he wanted to eat it and then got frustrated when I wouldn't let him. Blocks no way they don't light up or play any music. Coloring and finger painting didn't go over any better. Noah is so motivated by sounds, lights and music that all the stuff I got him was boring. I took a picture of my little stinker this morning playing with his "musical toy". Next to Noah are my poor little, lonely building blocks. Notice the smile on his face saying "Sorry ma ma no music no way."

Thursday, April 23, 2009

Noah is Bored.

Lately Noah seems to be really bored with all of his toys and everything I try to do with him. I am in the middle of being extremely sick with a horrible cough. It's really hard right now to find anything that will entertain him. He has been just holding onto my legs and whining for most of the day. I think he is just over all of the toys he's had for a while and is ready to move onto bigger and better things. What kinds of activities do your little ones like to do? I think I am going to make a trip to the store today and find him some more challenging things to do. That is only if I can make it out the door. My ribs are so sore from coughing and I am having lots of Braxton Hicks contractions. Please pray that this baby stays where it should be since we are moving very shortly. I just realized that I am rambling so the title should be titled Ramble Post. ...

Monday, April 20, 2009

Me Being Cool

Hey everyone,
This is me Noah. I posted these pictures of myself because I thought I looked really cool. I love to play with my belly and pose for the camera. These are my favorite puzzles in the pictures. I love to play with puzzles and read my books. I am really good at my puzzles now. Hope everyone will enjoy my pictures. I have to go to bed now. It's really late and ma ma doesn't feel good. I think I will go cuddle with her and let her know everything will be ok. Catch ya later. Noah.


Friday, April 17, 2009

Pregnancy Update and Some Thoughts.

I am now at almost 33 weeks and I can't believe how fast time seems to be going right now. I guess it is because in the next couple of weeks we will be moving. Yes, moving in the latter stages of pregnancy is oh so fun. Everything seems to be going alright as far as the pregnancy goes. It is really strange to hear the Dr say "Everything seems to be perfect" or "You are measuring right on time" or "The baby is growing right on track". When I was pregnant with Noah I never heard any of that. It was always something was wrong or not measuring quite right etc. So, this is a new experience for me but deep down I always feel like I'm waiting for the "ball to drop". I am getting a little anxious waiting for this new little arrival . I keep wondering how Noah is going to handle having a baby around. And I wonder how the new baby will fit into our lives. Will I have enough time to give to Noah? Will I have enough time to give to the new baby? I know these are normal feelings but its so hard to imagine right now. I have spent so much of the last 2.5 years with "just Noah". I have been able to give him my undivided attention and it scares me a little thinking he might not get enough of me now. At times I am sure I've gone overboard with my attention towards Noah and I know that I also need to give him space to grow. But its so hard because a lot of the time I feel totally responsible for how well he develops. I know in my heart that I can give Noah the correct tools but it is truly up to Noah to want to reach his own milestones. Before I end this post I have to give props to Noah. He has been saying "ball" over and over while playing with his ball. This morning I watched while he put a whole 9 piece puzzle together with no help. (way to go little smarty pants) and he is showing a lot of interest in walking this week. I am so proud of him..

Tuesday, April 14, 2009

Silly Noah.




Noah absolutely loves the camera and everything about having his picture taken. He is truly a ham in front of the camera. Lately Noah's wonderful sense of humor is showing its face around here. He truly loves to make me laugh during the day and when I do he shows me a huge smile. I can see the satisfaction in his face when I am laughing. And that makes me laugh even harder and just feel so happy inside. Its so nice to see the different sides of his personality coming out more and more. Here are some pictures of Noah trying to make me laugh..

Monday, April 13, 2009

Who needs a Easter basket??






Here is Noah relaxing in a hammock on Easter Sunday. I think he got in and out of it for at least half the day. Noah did get a couple of Easter Baskets but once he got the straw out he wasn't interested in what was inside. So, this is how Noah spent his day. Relaxing in the Florida sun.

Wednesday, April 1, 2009

Noah Chillin.............


Here is Noah doing what he loves most. Chillin in his office spin chair. Every day he listens to a different CD and bangs on the chair until I put him on it. If it were up to Noah he would spin on this chair all day long. As you can see he looks pretty happy. He looks so big to me in these pictures, I can't believe my baby is growing up.. I love you my little spinner..