Our Journey

We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.

Friday, November 27, 2009

What Are Noah and Nick up to?

It's been a long time since I have updated on my two little munchkins so here goes. We think we have finally found a preschool that we like for Noah. I have been searching like crazy for weeks now. We decided not to go with the public school system so we have been researching private preschools. It has been a long journey trying to find the right place to suit Noah and honestly to suit me. I hated almost everything I saw until last week. I'm not sure when Noah will start but I'm thinking after the holidays. He so desperately needs the social interaction. The school is an inclusion preschool so he will be with children with special needs and typically developing children. They have a great schedule and he would only go three days a week. He will still receive his therapies privately. Noah is still scared to walk after his two falls. Both times he fell straight back like a board on his head. I have had to go back to the bathrobe tie (if you recall I used that before) to gain his confidence. It is a hard blow to see him walking like a pro to refusing to walk. It made me sad but then I realized that he needs to gain the confidence himself in his own time. I have backed off, knowing in my heart that he will walk again.

Nicholas will be 6 months old soon Dec 9th. I can't believe how fast time is flying by and how big he is. He is already in 9 month clothing and even those seem to be tight sometimes. He is so tall. He has started solids and eats like a pig. He has loved everything we have fed him .. He is babbling like crazy and laughs all the time. He really is a "angel baby". I took him to the mall and it felt like I was by myself. He never made a peep from his stroller. He looks at his brother with so much admiration and is interested in everything Noah does. He is rolling over, sitting up and showing interest in all different types of toys. He adores to watch "Signing times" with his brother. He almost shows more interest in it than Noah. He loves to watch Noah play his computer games and is fascinated with life in general. He still wakes up sometimes in the middle of the night but hopefully that will stop soon. Both Noah and Nick are doing wonderful.. Thank you for reading about my two munchkins..

Tuesday, November 24, 2009

This is Noah being Noah



Yes this is our life. Chasing vacuum cleaners and loving it. I wish we all found such pleasure in the smaller things. Life would be so much more fun..

Monday, November 16, 2009

Wednesday, November 11, 2009

Will You Stay In This House and Rock My World?




If you know what I mean by the caption then you are just as embarrassed as I am. I put my headband on Noah and pretended he was from that reality show "Rock of Love.". The trashy Brett Micheal's dating show that came on vh1. I can't believe I just admitted that I watched that show on my blog but the sad truth is I did. Brett always wore a ugly headband to cover his balding head (so that is what the blue headband symbolizes) and at the end of the show his question to the trashy girls competing for his affection was "Will you stay in this house and rock my world?". So I was bored while Noah was eating lunch and as I took these pictures I asked him the same question. We laughed and laughed together during his whole lunch.. Ha Ha

Sunday, November 8, 2009

Hug Your Son or Daughter Tonight

As I am writing this there is a little boy who is 3 years old fighting to breathe. I found his blog only recently but have been so touched by his story and the strength of his parents. Tonight I feel immense pain for this family and the loss they are about to endure. They are with their son in the hospital praying for him to go home with God. He is suffering and has fought long and hard on this earth. I have never met this family but last night I cried for the pain they are feeling. I pray that they will get through this heart wrenching time and that their son will no longer feel pain. Tonight I look at my beautiful children and am thankful they are home with me. I am thankful they are not in pain. I am thankful that I can put them to bed and kiss them goodnight. I am thankful for so much right now. Please pray for this family. The little boy's name is Gavin. Please pray that his suffering ends soon. Hug your children and thank God you can tuck them in tonight.

Thursday, November 5, 2009

Pablo and The Pumpkin










We had the absolute best Halloween ever with the kids. It started out a little rough with Noah cranky but then he came alive with the spirit. Our neighborhood was awesome for trick or treating. I was not going to go door to door but if you could see how festive our neighborhood was, you would understand why I changed my mind. Noah was Pablo the Penguin and Nicholas was a pumpkin. This was the first year Noah was interested in walking up to the doors. Every house we went to he tried to walk in the front door. It was so cute. Nicholas loved all the lights and just stared at everyone dressed up. One of our neighbors had a haunted house that we all walked through. The kids didn't get scared at all. It was all around a great time for all of us. Some of the pictures show the fussy moments though. Noah was annoyed with his penguin hat and wanted it off the whole time. I think Nick was feeling the same about his bulky pumpkin outfit.

Tuesday, November 3, 2009

A Trip To The Pumpkin Patch












I am so delayed posting these pictures but they are so adorable. We had a great Halloween and I promise to post pictures of the kids in their costumes tomorrow.