We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Thursday, January 28, 2010
Time To Brag About Noah.
I haven't given an update on Noah in quite some time. Noah has decided he is going to try and walk by himself again. After he had the two falls and ended up in the ER he wanted to hold my hand again. It has been almost four months and he is slowly getting his courage again. Today I let go of his hand and he looked at me with a big smile and walked to the computer in front of us. He was so proud of himself. Later during the day I let go again and he didn't panic. He just walked to where we were going. Noah has been wearing a weighted vest for the last month and it has improved his balance and his anxiety. Thank you to Noah's uncle Micheal for working so hard making his vest. It really has made a huge difference. On Monday Noah will be starting horse therapy. We are so excited to see how he does with this. Ever since Noah was diagnosed I have wanted to include horse therapy. I am so excited. We also decided to wait for Noah to start school in August. It took a lot of sleepless nights and undecided feelings but the decision is made finally. I was just so nervous with him being at school and falling back like a board and getting seriously hurt. This way he can improve his falling techniques and I can work with him more. Yesterday I found out Noah knows most of his colors. The only ones he didn't know were gold and silver. He is amazing. He also knows the majority of shapes even oval, diamond and star. Those aren't even the basic ones. I am so proud of him. He knows so much it is unbelievable what he soaks in. He is also picking up new signs here and there and makes up some of his own signs. We try to correct him but he is determined that the sign for "yes" is to hit his head with his hand. ha ha.. Overall he is doing awesome and we are so proud of him...