Our Journey

We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.

Wednesday, January 13, 2010

We Have a Happy 3 Year Old





Noah is a sensory kid for sure. He craves vestibular stimulation like you wouldn't believe. Jumping, spinning, bouncing and swinging. While I was in NY with the kids Tom built Noah his "dream room" you got it a sensory room. Like the ones you see in Occupational Therapy. We knew this would be the perfect Christmas gift for Noah. When he is in the sensory room during OT he is calm, happy and in his element. We bought a therapy swing (thanks to the idea from watching Caden in it) from Southpaw Enterprises. Tom hung it from the ceiling and it swings, bounces and spins. He likes to spin in it while playing his favorite toy. Tom also built two boards with white blinking lights attached and invested in some lava lamps and a disco ball. It is our favorite room to hang out in during the day. Nicholas even loves to play in there while watching Noah spin. The good thing is the swing holds up to 2oo pounds (very sturdy.) Thank you Dad for working so hard on Noah's room. He says "thank you and he loves you."

10 comments:

Toots said...

What a great daddy you have Noah! Tommy, you did an awesome job with the room! What a great Christmas gift!

Brandi said...

What an awesome new room! It's grea. He is a fortunate young man to have such a great mommy and daddy. I would love to hang out in his room all day myself!

marilynd65 said...

Tommy, you did do a great job on Noah's awesome room!! You can see you put a lot of love and work into his special room. Couldn't ask for better Christmas present! We sure missed you when you had to leave.

Love ya

marilynd65 said...

Look at Noah's expression, Kristi. I told you he does not want you to know he is having fun!

Sawyer said...

That is such a neat room, your husband did a great job. What a unique christmas gift, I love it.

Kerri H said...

That is so awesome Kristi..I'm sure he loves it!!! Logan would love that room also!! So neat to have a room that they're happy in..hope all is going well!!

Christine said...

WOW!
What a great, great room! What an original present!
Nathan is a sensory kid too and you know i never even thought of a disco ball or lava lamps. Thanks for the idea. That swing looks pretty great too! Wish we could come over and play.

Hugs
Christine and Nathan

Michelle said...

oh wow! I sooo would love to do this for Austin some day. Austin is all about the sensory stuff too. I want to get him some lights for his room but just haven't found any that I like. I love the room!

Kelly said...

What an awesome room!! I might have to look in to that swing! Max would be in it all day! Max has a disco ball too! Kelly F

Have you been watching the Bachelor? I was hoping for a more exciting Bachelor. . .at least he is good lookin'!

Kelly said...

Wow, what an amazing room! I just love all the special touches.

Kelly W.