We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Wednesday, January 13, 2010
We Have a Happy 3 Year Old
Noah is a sensory kid for sure. He craves vestibular stimulation like you wouldn't believe. Jumping, spinning, bouncing and swinging. While I was in NY with the kids Tom built Noah his "dream room" you got it a sensory room. Like the ones you see in Occupational Therapy. We knew this would be the perfect Christmas gift for Noah. When he is in the sensory room during OT he is calm, happy and in his element. We bought a therapy swing (thanks to the idea from watching Caden in it) from Southpaw Enterprises. Tom hung it from the ceiling and it swings, bounces and spins. He likes to spin in it while playing his favorite toy. Tom also built two boards with white blinking lights attached and invested in some lava lamps and a disco ball. It is our favorite room to hang out in during the day. Nicholas even loves to play in there while watching Noah spin. The good thing is the swing holds up to 2oo pounds (very sturdy.) Thank you Dad for working so hard on Noah's room. He says "thank you and he loves you."