We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Monday, January 11, 2010
Why Am I Finding This So Hard?
I have lost so much sleep I can't even think straight. I'm not sure why I am having such a hard time with Noah going to school. I keep going back and forth on whether or not to send him. I searched for a long time for the right preschool and I finally found one. I don't want to let go. I am so scared I can't even being to express it. I have dreaded Noah turning 3 because I knew that's when most kids around here start preschool. For the last three years I have been able to protect Noah and know that he is safe. It bothers me to the core knowing that he won't be able to tell me if someone is mean to him or if he doesn't like the teacher. I'm so scared to put him in the hands of someone else to care for. I know what Noah wants. I know when he "signs" what he means. It's like in "our world" everything is normal and being different is our way of life. If I'm being honest the thought of walking out of the classroom and leaving Noah terrifies me. I may sound extreme to some but that is how I feel. Terrified.. I don't know what to do about feeling this way. I don't know if he is ready. I hate this.