We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Wednesday, February 24, 2010
I'm Just Like You
Have you ever been in a random place and hear this question? "How do you do it?". And then "I don't think I would be able to handle it,if I were in your shoes." How come whenever some people (not all) find out you have a child with special needs they look at you with pity? Don't they think I notice the "Oh I feel sorry for you look." And then some people assume you are this special, great, chosen one, that can do no wrong. As a parent of a child with special needs this annoys me. I want to say to all the wondering minds that "I'm just like you." I get up in the morning and take care of my children the same way you do. I take each day at a time. We do normal things like reading, playing, singing, etc. Do the people who think they would not be able to handle "it" realize I thought the same thing in the beginning. I'm just like you. I am a mom who loves her children. And, if you are one of the people who looks on a parent with pity because of her special child, please don't, smile instead. We don't want your pity. We love our children just the way they are. I wouldn't change this beautiful child for the world.