Our Journey

We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.

Thursday, February 4, 2010

Rewind Three Years Ago.

Do you ever wish you could rewind time? Do you ever wish that if you had just done that certain thing different everything would have been better? Some days I wish some days I don't . Today is one of those days. I starting thinking about what I really missed out on in Noah's first year of life. I feel guilty that I felt like more of a therapist than a mom. I am sure some of you can relate. I spent so much time of Noah's first year trying to "get him to do" that I feel like I lost some of his babyhood. I wish that I had taken more time to play and just be a mom. I know I did the best I could but I could have handled things better. I could have stopped to smell the roses instead of walking by them. I wish that I didn't take hours out of our day to do therapy, instead we should have been swinging in the park. I wish that I was more like I am today. Today I am so much more relaxed. Today I take the time to stop and smell the roses. Today playing, laughing and singing are way more important than therapy. Today delayed is ok and we just keep going. I know I can't change that first year but I suppose today is more important. I love you Noah.

4 comments:

Cindy said...

It is hard to look back on our mistakes and wish we had done things differently. I know I do! But you're doing it right now, and Noah and Nick love their Mom. I always say that having your first child as special needs is so much harder, because you don't even know what normal baby stuff is... You're doing great, Kristi!

marilynd65 said...

All the hard work you did with Noah was ALL GOOD!! Noah benefited greatly from all the time, energy and most of all LOVE you gave to him. You were new parent and had to find your way through a very difficult time. I am glad that you are taking more time to relax and enjoy beautiful moments with Noah and Nick. Love you, Mom

Toots said...

No one gives out a handbook beforehand on how to deal with unanticipated difficult times. So much of life is a mystery. But we learn and we grow into ourselves. You did a phenomenal job with Noah, and along the way you learned to ease up on yourself and relish each moment. The point is you've picked up that flower and can now smell its beautiful fragrance. The present is all we have. You are wonderful, and Noah is so happy in your care. He always was, and always will be.

Just remember, "Boom, boom, boom."

Tena said...

Awesome post!!

Yes, we are going to be in WI - I totally forgot to email you back, sorry hon!! Will you be there??