I have been told by Noah's therapist that he has gravitational insecurities. A child with gravitational insecurities prefers to stay low to the ground either lying down or seated. Rigidly fixing his body to avoid any movement, and avoiding most physical tasks. This is what they tell me but this is what I saw. Somehow I don't think their diagnosis is accurate. For some strange reason I think Noah is fooling us all. He had to climb up a swivel chair to get up on our computer desk. hmmmm.
We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.