Our Journey

We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.

Thursday, May 6, 2010

Look At Us.


Nicholas who is almost 11 months now got his first haircut last weekend. He was such a angel sitting in the chair. When the guy cutting his hair said "ok be still" he only moved his eyeballs. He laughed a lot and wanted to play with the brush. He acted like he had his haircut a million times before. Here are some pictures of Nick sportin his new haircut.

Some Noah news. This week Noah went to a tricyclethon at his therapy center. The company donates these bikes to children with special needs. The back of the tricycle has a handle that you can push if the child isn't quite ready to pedal with his legs. Did Noah need the help from the handle? Nope, he left his therapist in the dust. He took off and pedaled all by himself. He wasn't too happy about being there because it was horse therapy day. He kept signing "go" "horse". I would have rather been at horse therapy but it was canceled for the day. As you can see by his facial expression the tricycle didn't compare to his horse Cocoa. But, he will be getting a new trike in a couple of weeks.


Toots said...

Noah...I hope you return to horse therapy soon. But try to enjoy the variety! A tricycle sounds like lots of fun! And I see you're wearing the shirt Aunt Angie bought you from NC. That made me smile!

Nicko, kudos to you for being an old pro when you got your hair cut! You look handsome with your new hairstyle.

Kerri H said...

Way to go Noah!!! That is our summer project...get Logan more familiar with his bike....I am sure he will love it once he gets the hang of it!!! Love the pics...hope all is going well!!!!

Cindy said...

Can Noah teach Natalie to pedal her trike? It's my hope that she will learn this year, but so far not a lot of progress...

Every kid has his/her own strengths!

marilynd65 said...

Nick looks so handsome...you were such a good boy while getting your hair cut!

Noah, good job, as always, riding a tricycle for the very first time! Give your special mom hugs and kisses for Mother's Day!