Our Journey

We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.

Tuesday, June 8, 2010

Look Mom Noah Shares His Walker.

Noah doesn't use his therapy walker anymore but Nicholas found good use for it. It was really funny because Noah just looked at him with a blank stare and then walked independently in front of him..



Toots said...

Funny! Gotta love Noodes and his showmanship! Later Typi Nicki, he said in his head. ha.

Nicky said...

Hey Kristi - quickly catching up on your blog while Joyful Smurf takes one of his sixty second power naps. Loved the goofy pics of Noah and Nick and the "walker" post - what a cool big brother Nick has! But LOVED (as in LOVE with a capital WOW) last Wednesday's post (moments that take your breath away)...so stunning, so precious...a moment forever locked in your heart!

marilynd65 said...

Nick you are such a funny kid...love it! Noah and Nick are becoming great brothers and friends! Noah, you didn't like my version of Old MacDonald last night? You turned off the speaker but Nick did a jive in his high chair! Kristi, your boys are such a joy and make me laugh! Love, Nana

marilynd65 said...

Hey Nicholas I am glad that you enjoyed my singing Happy Birthday to you last night. Your mom said you were dancing in the high chair! I hope you have fun with your party this weekend...wish I could be there. HAPPY FIRST BIRTHDAY, Nicholas!!!! Love you, Nana

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