We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Thursday, June 24, 2010
Taking A Stand
Tonight I went to the same fitness class I go to every Thursday night. As the music came on the instructor put on her head set and the music was wrong. Into her microphone she said quite loudly "damn I'm such a retard." I froze for a moment, not wanting to believe that just came from her mouth. My stomach turned, I felt sick and wondered if I should just walk out. But I decided to stay. I decided to stay for one reason only. I wanted to take a stand. I was not going to walk out and go sulk about what I heard but I was going to confront it head on. I worked out thinking about what I was going to do the whole time. When the hour was up I knew. I thought of Noah,Natalie, Austin, Alex, Addie, Sammy, Caden, Nathan(both Nathan's), Emma,Jesus, AnnaKate,William,Logan, Matt,Sawyer,Frankie, and Max. All of the beautiful children who share Noah's diagnosis. I thought of all of the amazing parent's and children the word "retard" affects. At the end of the class I went up to the instructor. A few others surrounded her. I told her "when she used the word "retard" it hurt". I told her "My son has special needs and so did another person who ran out crying when she heard you." I also said "you never know who you are offending with that word." She felt horrible and apologized a million times. I told her "I just wanted to make her aware that it's hurtful and I told her it's ok". I didn't want to attack her but if I could change one person's view of thinking then I was satisfied. I left the gym feeling awesome that I stood up for what was right. I did not run out of the gym crying like the other mom. I stayed. I waited. And I stood up for my son. It felt great. I said in a previous post that I would not back down from this and I won't. This post was not a rant but meant to be positive. To educate any person that uses this word as slang. It was time for me to speak up. Stranger or loved one, we all need to be heard.