We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Sunday, September 26, 2010
Do You Want To Join Me?
On the path of hope? I have been doing a lot of thinking lately about my journey with RTS. Recently, I sent a article to the RTS list serv I belong to,regarding believing there is goodness in the human race. The article's main point was about people staring in public when you have a child with special needs. The author of the article introduced the concept that most people are not hateful and being mean by staring. They may be simply curious or willing to lend a hand if needed. There have been times over the last year or so when I have dealt with the stares. My first reaction was unlike the author's, I always assumed the person was annoyed or being ignorant. This reaction does nothing for me or my precious child. This reaction only closes the door to my son being treated as an important part of our society. It also shows bitterness within me and I refuse to live with that feeling. I refuse to turn away and sulk because a person happened to give me a look or made me feel uncomfortable. Instead I will put those feelings aside. I would rather believe that people are generally good. I would rather take the negativity and throw it out the door. For my precious son's benefit,I will do my best to look at society as a whole in a different light. I believe it's worse for someone to quickly look away than stare. Looking away, to me, means my son doesn't exist. So, I will take hope over negativity. I will hope for the best in people before assuming the worse. This doesn't mean I'm living in a fairytale world. I realize not everyone is a bed of roses but this is what I choose. Do you want to join me?