We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Tuesday, September 14, 2010
I Miss Him
I miss Noah. The school has extended Noah's day until 2.30 to prepare them for kindergarten. I miss him. I know it's the best thing for him right now and I know I should be doing things for myself but it doesn't make it any easier. Nicholas misses him too. He looks for him until he comes home. It is so hard for me to let go. I feel so empty when he isn't with us. I miss his laughter. I miss his hugs. I even miss his whining sounds. I hope the lump in my throat eases up soon. I hope this gets easier as time goes on. I know I will always miss him when he's away.