Our Journey

We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.

Tuesday, October 19, 2010

My Fourth Birthday Party!

I figured I better post about my Birthday party before it's already time for my fifth B day. I actually turned four on Friday!!!! Mommy brought cupcakes to my school for me to share with all my friends. The teachers made me wear a hat and they all sang Happy Birthday to me. I don't usually like the Birthday song but this year it wasn't so bad. When Mommy picked me up I still had my hat on. I was just trying to impress my friends by wearing it. I really was annoyed they put it on my head!! Then Sunday came and it was time for my party. I'm so excited to tell you that my party was all about ELMO!!! I LOVE ELMO. We had a awesome Elmo cake that Daddy got for me. Daddy was so proud of my cake and he made sure it didn't get messed up..When we went to get my Elmo decorations from the party store, I was in heaven. EVERYTHING WAS ELMO. It was so cool. I got lots of cool stuff for my B day. So, I want to thank everyone for thinking about me! And for wishing me Happy Birthday. And for loving me so much. Here are some pictures from my party. Keep reading my blog because I have lots of surprises for you now that I'm four!!!!!










Monday, October 4, 2010

I Forgot To Tell You!!

Hey all you dedicated readers it's me Noah. My mommy forgot to tell you all something really cool about me. I know I can't believe she forgot either but she's really busy most of the time. I'm doing Special Olympics!!!! Yup,every Saturday morning the whole family heads to my school for a hour so I can do my work out. The first time I went I really didn't like it. I was confused because I thought I was going to my classroom for school. My teacher was even there so what did everyone expect me to do. I kind of got upset because my routine was all messed up. And anyone that knows me will tell you
I like my routine. I was determined to get into my classroom for the whole hour. I even rolled my eyes at the volunteer. Mommy caught me doing it! Uh OH! The second time I went was a little better. I was fussy for the first ten minutes but then I did my thing. Some of my friends from my class are there too. The only thing that gets on my nerves is my little bro. He runs around my school like its his school too. But,I have to admit he does help out a lot. I get really motivated to do stuff when my bro is around. Mommy and Daddy are going to make me a visual schedule so I can see when my routine is going to change. Cause remember I like my routine.
I hope anyone that loves me will support the Special Olympics when they can because it's really important for my confidence. That's what they tell me anyway. Well gotta go.. I have a big day at school tomorrow. Can you believe my Mommy is letting me go for 6 hours a day? I can't either. I know she misses me a lot though.

Bye guys, Noah.