Our Journey

We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.

Tuesday, January 4, 2011

A White Christmas.

Nope not in Florida. The whole family drove to WV to see my sister and her family. It was a long drive with Noah and Nick. They actually are pro's since we drove to Ohio for the RTS conference. It was truly amazing to see how my two boys reacted to the snow. Nick is the toddler with no fear literally. And Noah likes to hang out in familiar territory where it's warm inside. In other words Nicholas and Dad hung out in the snow and went sledding. And Noah and I relaxed by the fire and watched movies. It was freezing for this Florida girl. This was the first Christmas I think Noah really gave a hoot about. He was in love with the tree and loved hearing me sing Christmas songs. Nicholas equally loved the tree and was even more excited to pull off the ornaments. Both kids got some awesome gifts but their favorite was a electric toy train and a play kitchen. It still hasn't kept them out of the real kitchen though. We had a beautiful, funny, warm and also cold Christmas. Thank you to Heather, Micheal, Hannah, Seth and Adyen for having us. Here are some pictures from the visit.


marilynd65 said...

All the boys look so adorable and so happy together!! Glad you had a wonderful Christmas! Grateful all of you got home safely before the blizzard. Love you, Nana, Mom

marilynd65 said...

I forgot to mention that I love the train....looks like Noah does too! The idea about the kitchen was great...I was hoping it would keep them out of the kitchen though. Nick did a great job building with the lego blocks(?) So happy you were with family and not alone in FL.

Tena said...

Precious boys!!! Caden got a harmonica from his associate for Christmas and he cannot leave that thing alone! It's too cute.

Cindy said...

Those are some cool toys! I like the alphabet puzzle myself. I'm glad you had a fun Christmas, and I would have chosen to stay inside at watch movies, too.

Your friend,