Our Journey

We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.

Wednesday, February 2, 2011

Noah Being A Kid



I forgot I had this video. This is Noah with his cousin Seth in a pit of corn. When my family visited back in October, we took everyone to a huge farm for the day. Noah enjoyed most of his time in this pit of corn. Noah is a total sensory kid. He loves to feel anything in his hands. He craves any kind of tactile stimulation so this was the perfect activity for him. And Seth is being such a awesome big cousin.