Our Journey

We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.

Friday, March 11, 2011

I Can't Imagine

Recently I read about a mom dealing with a specific physical problem with her daughter. In the post I read she wrote "at least she doesn't have a cognitive disability, I don't know how they do it?" "They" meaning me because my son has a cognitive disability. This is how I do it. I get up every morning, make my son breakfast, get him dressed, take him to school. Pick him up from school, love on him, read to him, feed him, play with him. I take him on walks, we pick grapefruits, he climbs up his tree house and plays with his little brother. He speaks with his hands and is a genius on his I pad. I tuck him into bed and I take care of him when he is sick. I tell him I love him a million times. I tuck him into bed and he kisses me goodnight. That is how I do it. Kind of like you. Our life does have extra challenges but we live just like you do. And we love just like you do. This is how I do it and I wouldn't change him for the world.


Cindy said...
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Cindy said...

Nicely said!

Weren't we all there...before we were here!

marilynd65 said...

I love your answer to this lady's statement. I say it all the time...I am so very proud of you, Kristi!!!

Jessica mommy to Alex/ RTS said...

I was that lady too.....So glad my mind has changed....nothing but peace where I am:)

Toots said...

If you're a mother, you love, plain and simple. From love, that's how you do it, as you said. But for those who haven't experienced what you have, they can't possibly have that perspective. You learn "how you do things you might have felt impossible" through living it. You have done so graciously and with pure love. Noah is lucky to have you.