We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.
Friday, September 23, 2011
Yup it's been a very long time. I've missed you blog but for some reason deserted you for 6 months. I kept telling myself that when I felt really inspired or in this case really pissed about something, I would write. The next part of my entry will be from what I know Noah would say if he could.
Dear Idiots, who don't know me and want to judge me because I don't speak with my mouth. My name is Noah. I'm almost 5 years old. I know so much more than what some of you give me credit for. Yes, I'm unable to talk right now with the spoken word but I communicate. I speak with my hands and most of all I speak with my I pad. I create sentences. I let those who believe in me know what I'm feeling and what I want to do. Yes, I do feel just like you. I know exactly what I want and how to ask for it. I understand what you are saying to me. Don't underestimate my understanding. Don't assume I won't understand until you challenge me. My mommy and daddy believe in me so I know I can do anything I want to do. So, to those of you that think you know what I can't do...Open up your eyes because I can and I will.