Our Journey

We decided to create a blog so we could share with family and friends about "our journey". Our son Noah is 4 years old and he is the constant light in our world. He was born with a rare genetic disorder called Rubinstein Taybi Syndrome.. Life has not always been easy but Noah has taught us how to be courageous. We are so proud of his accomplishments the past four years. He is beautiful, funny, courageous and strong. We feel so blessed God has chosen us to raise Noah.. We also hope that new parents receiving an RTS diagnosis will find comfort in our words. Nicholas is the perfect addition to our family. God has once again blessed us with a amazing, beautiful little boy. We are so comforted knowing that Noah now has a little brother. Life is beautiful having these two angels in our world.

Sunday, October 9, 2011


In a few days it will five years ago the friendly Dr told me Noah had Rubinstein Taybi Syndrome. Five years but it almost seems like yesterday. So much can change in five years. Dreams, perspective, hope, determination, strength, and peace. Those are just a few of the words that pop into my head when I think about myself,the different things that have changed me over the years. After hearing the words Rubinstein Taybi Syndrome I thought my life was over. I wish I would have known that it was the beginning of something more beautiful than I ever imagined. The beginning of a little boy's life that would change me forever. That would make my heart that much happier. I didn't know he would make me see the world so differently. I didn't know he would make me even more compassionate than I already was. Noah has given me so many gifts. Yes, there are challenges but the success of beating those challenges is more powerful. The determination I have seen in Noah's eyes as he faces his challenges humbles me. Five years ago I had no hope. Today hope is what keeps me going. Most importantly, five years ago I thought I would never feel peace again. But, I have never been so wrong. Peace is all around me and I am so blessed. I still wish I could be who I am today and comfort my old self. I wish I could tell myself then all I know today. I wish I could sit and hold my old self's hand and give her my present strength. But, instead I will take the strength within me now and run with it. Thank you Noah. I love you more than the sun, moon and stars. Happy almost birthday..